Alright to all my faithful followers, I send my deepest apologies for the lack of writing over the past few weeks. Our life has been on a bit of a roller coaster ride from every angle.
I will start with the most important update...SAMANTHA GRACE.
I have to say that these past few weeks she has been at the front of the roller coaster ride. We and her doctors are at a loss for what her body might be going through besides the normal things that 1-year-olds go through. We have experienced some of our lowest lows and highest highs in quite some time since diagnosis. Unfortunately, last week we also experienced one of our first at-home-scares. SG had a "Degree 2" seizure. (This type is one where the patient is unresponsive to one's name being called and stares with glassy eyes into space, much like day dreaming but unresponsive.)I was so thankful that her preschool teachers noticed a change in her demeanor and came and got me immediately.
The mystery of the seizure is that it occurred when she was overly high (472) not low, which is usually when one occurs. This is one of many mysteries to her endocrinologist. In addition to the occurrence of the seizure, Dr. L doesn't know why we can't get somewhat of a leveling or consistency to her Blood Glucose levels. In less than a 24 hour period her readings were 223, 411, 412, 107 & 82. This has been her story for over 5 days.
We are still waiting to hear from our Insulin Pump rep. in Birmingham to see if we are going to get the pump without a "fight". The good news that I owe a HUGE thanks to a wonderful church member is that our "special" insulin will now be able to be filled here in Montgomery! PRAISE THE LORD!!!
On a much lighter note...Samantha Grace has had quite a few new life adventures. She has now joined the in-home ministry visiting team. She went to Wesley Gardens with her Godmother and Aunt Phyllis becoming quite the hit with all the people there distributing kisses to all of the residents. Mr. Harwell, a church member, drew a picture of a puppy for SG. They had quite the fun-filled day enjoying a nice lunch at Panera afterward followed by an elongated nap.
SG has also officially started preschool! She is enjoying the playtime with other children and all the wonderful attention that her fabulous teachers give her. I am enjoying being able to witness all her interactions (I am the assistant director at the school.) as well as the fantastic naps when we get home!
We have enjoyed traveling to a variety of destinations as of lately for some quality family time. SG experienced her first Montgomery Biscuits game this week supporting Juvenile Diabetes all the while. We are looking forward to visiting Ama and Papa this week to celebrate Papa's 60th birthday! SG will be able to see a HUGE baseball stadium this week and her first Atlanta Braves game as well!
As a family, we continue to thank our Lord for so many of you that have and still are praying for us. As you can see by this entry, just when things appear to be stabilizing we are thrown another curve ball. Our continual prayer request is for stability. Along with that we are still praying for the decision makers of BCBS of Alabama that they would see our need for the pump. Finally, we ask that you would pray that the Lord would pour large amounts of wisdom in some medical and other decisions that will have to be made in the near future.
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